“Never let your ego get in the way of asking for help when in desperate need. We have all been helped at a point in our lives.”
― Edmond Mbiaka
Here I am. 2019 was an exciting year, a year of many events: 25 in total. I have met so many amazing people!. I love being out there with the community, love how much i have learned from all the wonderful people out there.
Sadly 2019 was the year when i was diagnosed with type 1 diabetes. My grandma and 6 year old niece are type 1 diabetic as well. This wasn't a foreign concept to me but i wasn't aware of how difficult the day to day of a diabetic person can be, not only about counting carbs, bolusing or watching what i eat... the amount of information and the huge responsibility of having to truly think like a pancreas isn't easy. It's running an automated embedded process fully manually. Adding to that the fact that i had been dealing with cancer previously.
What i mentioned above, although extremely troublesome isn't the big issue at this moment. I had been uninsured for a year and i am now covered for 2020. From the moment i was diagnosed i had to pay all my treatments, hospital visits, doctors visits and medication out of pocket. What i didn't know was how extremely expensive it is to be diabetic in the United States, just to give you an idea of the cost, in order for me to have my insulin, cgm and pod supplies (a pump is extremely expensive and out of the question) i have to spend $2500 only in insulin, $550 in medication (including Metformin because i am also insulin resistant and that's using a generic brand, if i took Glumetza which is what i was originally prescribed, it would be $1000 a month), $380 for a month's supply of pods for Omnipod, $350 for 3 Dexcom G6 sensors and $370 for a spare transmitter because you never know. And, there are other things, low BG supplies such as Glucose tablets/gummies or gel, Extend Nutrition Bars or Glucerna to make sure i keep steady levels at night as much as possible and the list goes beyond just a few paragraphs. GoodRx has been a saviour to some extent.
At this very moment, i support my mother, who lives with me, and my family in Venezuela, a country in one of the worst humanitarian crises, where people have no access to food or medicine. So not only do i send money, but i do send supplies to make sure the two relatives i have left in the country have the bare minimum to survive.
With $4150 a month only in meds/supplies alone, hospital debt and the responsibility of people who truly depend on me to live, i am beyond where i can manage. Just this morning, we sent 4 boxes of supplies and christmas to Venezuela, which was the last stretch i made myself.
November drained me. So much, and so much debt that i know i won't be able to make it through december to cover my own health, my own supplies that guarantee i am alive. I will never understand how the system works in the US because it doesn't make sense that the medication that is extremely necessary to live is SO expensive, unreachable and not accessible. Let alone the bureaucracy you get caught up in to be able to enroll to get coverage.
I have looked for side gigs, freelance, consulting work and even data entry with no result to an urgent issue like a bomb clock, ticking, knowing when your life supplies will end. I resorted to create a redbubble page selling stickers but even though a LOT of friends and people from the twitterverse have chipped in, buying stickers, redbubble only pays 84 cents per sticker.
Which is why, i have to resort to ask for help to make it through the end of the year. If it is within your possibilities to help me out, i thank you from the bottom of my heart. If it isn't possible, spreading the word helps tons. If neither is possible, i appreciate good wishes, prayers and good vibes.
For now, i am taking a break from public speaking as i announced it before to be able to deal with my health issues, which have been a roller coaster and i need to rest. Haven't done it in over ten years.
Thanks for taking the time to read this and again, thanks for all your help.